νόηση, ετών 18:)

Ψηφίστε εδώ: http://woobox.com/a4r8ef/vote/for/1548193

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  Our silent angel princess, never gives up. Konstantine is a four year old girl challenged by Rett Syndrome. Sending you her love from Greece.

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  shaggy but lucky Butterfly Princess Margaretka Joy is sometimes stronger than the pain, it shows us a day 7-year-old Meggie skin delicate as butterfly wings. Marian Várka Slovakia Epidermolysiss Bullosa Dystrophica

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  Grande empurrão. Com a ajuda de todos tudo se torna mais fácil. Ana - Portugal - Ataxia de Friedreich ------------------------------ Big push. With everyone's help, everything becomes easier! Ana - Portugal - Friedreich's Ataxia

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  we are the best half of family :) me Marijeta, my twin brother Mihovil and my 11 month older big brother Patrick. (other half is my big twin sisters Dolores and Dajana, baby sister Stella and my mum Valentina) We are living in small town in Croatia, and i thihk i am the only one in Croatia with Parry-Romberg syndrome PRS or Hemifacial atrophy progressive HFA. I also have a Hashimotto, and cyst on the pineal gland.

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  Little brother and sister in action Playing,fighting and loving each other like all siblings do, Thomas and Eleftheria, kisses from Greece, Eleftheria is a six- year- old girl challenged by RETT SYNDROME

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  Don't leave disability rule your life Katerina Bletsa,Greece,diagnosed with Friedreich's ataxia

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  I'm happy when comes the spring. Life is the most beautiful gift of God! Irina - Romania - Lobstein's disease.

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  We don't let osteogenesis imperfecta rule our lives ... Alice Boyd is 3 yrs old live s in Ireland with her mum dad 2 sisters and 3 brothers.

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  - COMPICIDAD ENTRE DOS GRANDES SERES - En las XIII edición de las Guerras Cantabras en Los Corrales de Buelna (Cantabria), Fistas de Recreación Históriaca y calificada de Interés Turístico Nacional... donde se recuerda cuando el pueblo cantabro, tubo que luchar entre los años 29 a 19 AC contra el Ejercito Romano. - Lucas Argoitia Gutiérrez - España - Huesos de Cristal (Ostogénesis imperfecta)

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  Father / son special moments. Levi and his dad sharing a good laugh at the zoo. Jason & Levi Ormeroid USA Sanfilippo Syndrome type C

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  My "angel of the earth" is a 23years old girl, named Vasiliki-Christina Kondyli, who suffers from a rare disease, called Rett syndrome. She is a brave greek girl. She had never walked, spoke, studied or fell in love. She loves music, travels and to spend time with hers beloved relatives. She lives with her family in a decent way and happiness. she also has alongside her a lot of people that love and care about her. From her expressive and clear glance, sends love hopefull messages to all the people of the world. From Beutifull Greece, with love!

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  Ella van der Velden, has kaposiform lympangiomatosis. It is a rare disease that only 18 people in the entire world have. Ella is from the Netherlands but lives in the United States right now. Ella is bald because she is receiving chemo. Ella is 11 years old. Photo taken by Marcel van der Velden.

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  Enjoying the magic at disneyland paris, Sethi snoeck, France , Wiskott Aldrich Syndrome

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  El lenguaje de las emociones Las emociones son nuestro lenguaje humano más universal. A través de ellas somos únicos así como empatizamos hasta el punto de sentirnos más unidos que nunca. Si además ésto se da entre una madre y su hijo el poder que tienen es infinito e incluso evoca emociones al resto de seres humanos. Cristina (mamá) y Daniel (su hijo) - Spain - Sanfilippo syndrome

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  Frédérique, autoportrait pour symboliser les douleurs invisibles liées au Lupus. FRANCE

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  Ali in the ocean. Ali is a 6 yr old little girl who lives in the United States, suffers from Stone Man Syndrome, or FOP. FOP is one of the rarest and most disabling conditions know to man. Unfortunately it is terminal and there is no cure or treatment available at this time. 'The water may wash away her footprints, but nothing will take away the memory of her walking in the ocean for the first time' Ali - USA - Fibrodysplasia ossificans progressiva

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  Daisy's Hands. Daisy has Costello Syndrome (a mutation on the hras gene), we are told she is dysmorphic, we think she is beautiful! Daisy Nimmo, London, UK

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  Маленькая мадмуазель,Маша,г.Миасс,Мукависцидоз.

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  If you want something - just do it, because tomorrow can never come!!! Even if your heart stop next moment, you still have THIS moment! Iryna, Ukraine, long QT-syndrom + myastenia gravis

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  Closer Ester in a photo session with a popular Hungarian actress Hegyi Barbara and Szili Eszter- Hungary - Rett Syndrome

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  Unique in the world but not for celebrity - Lily and Tristan are twins both suffering of an extremely rare disease as they are the only ones known at this day in the world with a mutation on MRPL3 gene - France - Mitochondrial Cardiomyopathy

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  1 week old Emily Grace living with ARPKD - Great Britain - Autosomal recessive polycystic kidney

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  My angel Fannika Rett syndrome. 15 years old. She live in Hungary . I just had spinal surgery due to a high degree of scoliosis. I really like her ... :) Closer Fanni 15 éves most volt a gerincműtéte scoliosis miatt.

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  Sister Kiss: two lives, one story to face together the future of a rare disease: Williams syndrome. Because both are proud of themselves, even if one of the two has the stars in her eyes. Ludovica and Eleonora from Italy Rare Disorder: Williams Sindrome

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  Le sourire. Frère et soeur, même maladie rare, même combat, même joie de vivre !!! MATTHIEU

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  i love life

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  Rêve devenu réalité - Antoine - Belgium - Trisomy 11p

   

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  EB is not just a spot on the skin. EB are spots that hurt. Stella Chiara, Slovakia, 6 years old girl with Epidermolysis bullosa.

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  Celebrando la vida con mi hijo y mi nuevo trasplante renal - Tamara - Spain - Atypical Hemolytic Uremic Syndrome

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  Carlos playing with marionettes. Carlos Serrano. ESpaña Lesch-Nyhan Syndrome

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  Unique, différent et heureux! Antoine - Belgium - Trisomy 11p

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  Enjoying life to the Fullest! Jarod is a fun loving kid that loves life and people. Undiagnosed Lipid Storage Disorder.

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  'Living with the Challenges of a Rare Disease'. Whatever disease you have and however uncertain your future is - life goes on. Alfie Milne. Scotland. Lymphangiomatosis

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  "My brother I can rely on" Sunna´s brother is always there for her no matter what. Sunna Valdis Sigurdardottir Photo taken may 2012 Iceland Alternating Hemiplegia of Childhood (AHC)

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  Fiodor Biryukov! My dear son! He has already survived so much and suffered! But we believe in and do not give up! And it won a huge victory! Determined the diagnosis! Rare genetic Disease tyrosine-HIDROXYLASE-Mangel Saint-Petersburg, Russia

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  Marley Weaver, USA, Alternating hemiplegia of childhood.

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  When you love, impossible is nothing! Robert Veres and Ioana Platarescu - Romania - Werdnig Hoffmann Syndrome

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  Happiness! Children with aniridia, from day of birth, know what the surgery and hospitals are... but they try to be happy every day! Eliza - Russia - Aniridia

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  PHOTO: PERSONAL ARCHIV - SIMON PETROVČIČ, SLOVENIA, MARFAN SYNDROM

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  Sunshine - Nika is a wonderful, open and sincere girl, pure in heart. Her genuine shine gets deep into everyone around and warms the soul. Nika - Ukraine - Anophthalmia

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  Vera 12 years.Rossiya.Sanfilippo (MPS III A)

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  Because life means love, beauty... and a lots of smiles... Simona - Romania - Werdnig Hoffmann Syndrome

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  “Amazing moment. Don’t miss it up : ))) !!! So we are living right here, right now and enjoying life. My daughter was the first child in Russia, who was diagnosed with Tyrosinemia type 1. This happened in December 2007, when my daughter was just two years old. Nowadays she is eight. We are happy all together. Alina Suleimanova. Russia Federation. Diagnose: Tyrosinemia type 1.”

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  Enjoying life and natures beauty going for a walk with the dogs on holiday in the Netherlands Johanna from Germany, Rett-Syndrome

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  Anyone can Love Amber Partridge (standing)from UK living with CDKL5, and Maia Malone (Sitting) Ireland living with CDKL5. The first time they met.

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  Name of our daughter is Lena, she is 3 years and 6 months old. Lena was the fourth child in Russia, who was diagnose tyrosinemia type 1. Now there are 12 with such diagnose in Russia. There were a lot of barriers to get appropriate treatment. Thanks God, we were lucky and Lena was the first child who got life necessary treatment via government supplying. Nowadays she is in excellent physical and intellectual shape, enjoying socialization with other children, fan of poetry and she often recite poetry learning by heart. When she was diagnosed tyrosinemia type 1, the future didn’t seem so bright. We don’t cultivate in our family disable child way of life. Our child is especial child, who is equal for chasing happiness and dreams in her life. The most important things: she is happy, she is with us, she is alive.

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  Hunter Jack, Hunter has a rare eye disease called COATS Disease. Picture taken by his Granny we are from Oklahoma USA

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  Maria, in parc - poza este facut de prietena mea - Romania - Amyotrophic lateral sclerosis

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  princess on her motorcycle + Zofia enjoys a ride on her homegrown motorcycle + Zofia Hinz + Poland + Epidermolysis Bullosa

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  Miracle child. Russia is not the best place for special people. But we are happy, and we will live happily on this planet. Marfa - Russia - Cystic fibrosis

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  Daniil,10 years ,Russia,Morkio syndrome (MPS IV)

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  Isle of Skye - 1st Holiday to Scotland - McKenzie Deutrom - Ireland - Hypopituitarism

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  sonrisa magica, soy angel gabriel de NICARAGUA mi enfermedad se llama osteogenesis imperfecta o huesos de cristal. mis huesitos se fracturan pero nunca mi sonrisa magica.

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  We don't let osteogenesis imperfecta rule our lives ... Alice Boyd is 3 yrs old live s in Ireland with her mum dad 2 sisters and 3 brothers.

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  sleeping on the bench vasilije, serbia epidermolysis bullosa

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  Festival de Orquídeas. Sókrates tem a Doença de Machado-Joseph. Mora em Campo Grande, Brasil e completa, este mês, oito anos de casado com sua esposa, Adriana.

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  Doctor Who? Charlie was diagnosed with ARPKD the day after birth and it was the scariest time of my life; the realisation that I could lose my precious baby, and his twin lose his brother was almost too much to bear. Now, at eleven years old he is currently off any medications and still has good renal function. Charlie is living life to the fullest and enjoying every minute of it. He's an incredible boy and we are very blessed. In this photo, he was dressed up for a family wedding and he felt marvellous and said he looked just like Doctor Who?. Charlie - United-Kingdom - Autosomal recessive polycystic kidney

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  Occhi stellati. Adriana è affetta da Sindrome di williams, ha 6 anni è una bambina dolcissima e sensibile, adora cantare e le piace ascoltare la musica. Napoli

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  En el CHUAC con Sindrome Hemolitico Urémico Atípico en A Coruña, Rocio

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  Me and my sister in the mountains. The sky is the limit! Robert Veres and Doris Veres - Romania - Werdnig Hoffman Syndrome

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  Unidos por el amor - Anthony - Ecuador - Hypohidrotic ectodermal dysplasia

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  Sunt imbracata in costuml popular pentru ca imi doresc sa ajung o solista de muzica populara..Dizabilitatea nu e un obstacol.. muncesc si am sa reusesc! Danuta - Romania - Werdnig Hoffman Disease

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  Walk in the nature wit my Family - Andrej - Macedonia - Alagille syndrome

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